Welcome to all......

I would like to welcome ALL newcomers to my blog: Gene Chapman's ALS Journey. I was diagnosed with ALS (Lou Gerhigs disease) back on 1/12/2010. It was confirmed on 2/12/2010. I enrolled and started in a 3rd stage drug trial out of the Mayo Jacksonville, Fl. Clinic that will hopefully stop but not cure ALS. My first dosing was on 4/30/2010 and my wife or my daughter in law administers two 20 cc dosages twice a day, one per sitting, 12 hours apart via a picc line that was surgically placed in my jugular vein.

I have filed for and should get disability by the end of August, 2010. Till then, my wife and I carve out a living with our two dogs in the Gainesville, Fl. area.

Wednesday, May 26, 2010

My apologies.......

I want to first apologize to everyone for not posting anything yesterday. The following is not an excuse, just an explanation.

Yesterday was really tough for me. I woke up, felling OK, but as soon as I got moving around; zap! No energy, no drive, no desire, no nothing! Yes, I did have something. That "something" was aches & pains all over! I had to wait till my son came over to bring me breakfast, for him to open the pain med. bottle, since I couldn't. After breakfast & one pain pill; I didn't wake up until 12:30 pm. When I woke up, I got caught up in lunch & arraigning a phone appointment for today. After lunch, cat napping until Sharon got home at 6pm. Dinner was brought to me, thank you Mike, and then I helped Sharon refill our meds, then Charlie & the Chocolate factory and a shave with my new shaver, thank you Sharon, then bed time.

Today, a bit better, No pain pill and I am posting on the blog.

As for where I left everybody hanging on Monday: Here is why I am angry with BOA in general there lawyers, specifically. When we were told we got our mortgage re-modification, we were told that the one last thing we had to do was come up with and forward to BOA by 6/14/10 was the $2000.00 the lawyers want to settle there bill for BOA! A big concession since there last bill was ten times that amount!

So after discussing this situation with Sharon on Sunday evening; We have come to the conclusion that if we can raise that amount, we can save our house. If not, we move in with somebody, either Mike or Steve or some cheap trailer in Alachua. Now this $2000.00 will be a stretch. We blew thru our savings and our EM fund, when we remolded our house & moved in. We sold everything of value on eBay. The wetsuit that recently came back & has to be reshipped, is the last item of my scuba stuff. We are living more of a paycheck to paycheck than ever before!

Since I lost my income in February of 2010 & we found out my SSADI was fixed and scheduled to not start until August 25, 2010. My monthly check will be right at half of what I was making when I was working; this transition has been tuff & depressing. That doesn't even include the Medicare Part B premium! Sharon & I have gone from loving our lives to hating our lives. Not life itself or even our lives together; just life in general & feeling POWERLESS to change it! We are very aware that one or both of us could slip into a depression, so we are constantly on guard to this evil.

We are not in a position to BORROW this money because, frankly, we don't know if we can pay it back or even when we could pay it back, at all! Sharon's sister Sandi Fentress has offered to be a fund raiser, so if anyone feels led to contribute; her number is 352-636-1996. I believe her email is frentress@comcast.net.

This is our LAST option. We are asking for Medicine, in the form of whatever you are led to give, after reading this. It can be anonymous or not; it's your choice. We just need it by 6/14/10 or the Sheriff gets a sale date from the clerk of the court who gets it from the bank. I know it's NOT PRETTY, but that is the reality of the situation.

In conclusion, In this mortgage re-modification program that Congress has funded twice, I believe; the ONLY people that truly win are the lawyers. That's not surprising, when lawyers came up with it, a lawyer signed it into law and lawyers reviewed it and put there blessing on it. By the way, that $2000.00 is two months of mortgage payments and the payments wouldn't start until August of 2010. Mike & Madeline have been considering moving in with us for two months now. To help with my care & all of our financial needs, by merging two households into one. We & us can not to anything until this is resolved.

I think the place to start is where Shakespeare says in Hamlet, "Kill all the Lawyers.........."

Love & Peace to all, Gene

3 comments:

  1. P.S. Since my ALS clinic day is tomorrow and my drug study day is Friday and Monday is the legal Memorial day Holiday; There is a distinct possibility that I won't do a post on the blog until Tuesday, June 1, 2010. Gene

    ReplyDelete
  2. Upon the advice of my ALS advocate; I removed a link that did not do what I believe it was intended to do by the person that set it up. My advocate also suggested we clue in the local Gainesville news organizations on this, a potential human interest story.

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  3. Gene, my email is not correct on this post, it's fentresss@aol.com
    We're looking forward to seeing you this weekend

    ReplyDelete